Congratulations to Rowan in Paris!
Congratulations to Rowan in Paris for your shiny new baby!
View ArticleReglan FDA warning
Many EA/TEF patients are diagnosed with GERD (gastroesophageal reflux disease), and Reglan is a common drug prescribed. The following is a US FDA warning about Reglan, which may affect some people....
View ArticleJoe G's story
Joe G. writes in from Denver, Colorado:Joe: I was born with Esophageal Atresia in 1958, Denver Colorado. I beileve my esophagus was only an inch or two at the most. They waited until I was 2 years of...
View ArticleBianchi Thoracotomy
Dr. Edwin Jesudason writes:"In Liverpool, we have been using a technique first described more than 10 years ago in Manchester, UK by Adrian Bianchi - to make use of an incision that is hidden in the...
View ArticleNew Esophageal Center at Cincinnati Children's Hospital Medical Center
Esophageal Center features the multidisciplinary expertise to treat children with even the most complex esophageal disorders, such as esophageal atresia (EA) and tracheosophageal fistulas...
View ArticleThe recurrence risk for siblings is 1%
I'm frequently asked if I know how likely it is to have another child with EA/TEF. The official answer, according to http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1884133/"The overall risk of oesophageal...
View ArticlePlease help keep eatef.org going!
Our website domain name is up for renewal again. Thanks to your generosity last time, this year's bill is almost paid. If you'd like to ensure that our website continues its global reach, this is the...
View ArticleSome words of encouragement from a community member
Someone would like to share some anonymous words of encouragement. Thanks, anonymous! If you'd like to share something, you can email me at matt@eatef.org, or send a private facebook message to EA/TEF...
View ArticleAn EA/TEF Story Inside And Out
http://www.eatefbooks.com Every year when school starts, parents get anxious about how to "explain" their EA/TEF child to their community at school.Vanessa Munsch created "An EA/TEF Story Inside And...
View ArticleAbigail's Smile
Ami Hays wrote this children's book about EA/TEF for all of you to have a book in your home that your child can understand about EA/TEF. The illustrations and short story open up the conversation and...
View ArticleUW-Madison Study Published
A big "Thank You" to all who participated in the University of Wisconsin-Madison questionnaire. Your participation helps the medical community better understand the need for long-term care, especially...
View ArticleAdvice from a Former TEF Preemie, Now a Preemie Dad
Thanks to Laura and her family for writing this inspiring blog entry http://www.preemiebabies101.com/2015/06/advice-former-tef-preemie-now-pr...
View ArticleSonoma Academy student's guest at school: Surgeon who operated on him as newborn
Here's an update from Dr. Foker's second patient, Logan Ebert, who was also featured in one of our original 'Family Stories'. They are extremely pleased with the results from Dr. Foker, and are eager...
View ArticleNationwide Children's Hospital research survey
Nationwide Children's Hospital, in collaboration with the American Academy of Pediatrics Section on Surgery is conducting research related to the care of children with esophageal atresia and...
View ArticleUpdate from organization founder Sandi
Sandi, who created this organization twenty-six years ago, recently wrote in with an update about her daughter, and some words of encouragement for others. Thank you, Sandi, for helping and inspiring...
View ArticleDiscussion forum logins still broken
Hi all,Logging in to our discussion forums had been broken for quite some time (months!). I was finally able to track down the problem(s), and you should now be able to log in again. (I'm still working...
View ArticleDiscussion forums back online
After a very long outage, the discussion forums are back online. Thanks for your patience.
View Article
